Wednesday, June 26, 2019

My Autoimmune Journey

 Welcome to my journey. My journey through my Autoimmune diagnosis. Learning how to cope with symptoms, allow my body to heal, and figuring out just what it is that is going on.

 About a month ago I got some bloodwork back that showed antibodies for my liver were very, very high. Indicative of Autoimmune Liver Disease. I am heading to a specialist in Boston in a week or so to get more testing and treatment. 

 For a few weeks now I have felt off, but last week I was really off. Exhausted at 10am, my brain was so foggy, I had no appetite, I couldn't control my emotions, and to be honest, I was seriously and deeply depressed for the first time ever. I finally said enough was enough.

 I went back to the doctor who did a full work-up, and upon examination we found my thyroid to be very tender to the touch and inflamed. He did intensive blood work and my thyroid antibodies which are supposed to be under 35 came back at over 1000. Immediately I was diagnosed with Autoimmune Thyroditis and I am going to a specialist in Boston for this as well. 

 This all has been so hard. Every day I wake up wondering...what is going to happen to me today? Will I be tired? Will my anxiety flare up? Will my heart race all day?

 I know that I will overcome all of this. I will defeat this. I have already started reading books and doing as much research as I can to change my lifestyle to better my health. For myself, and for my family. Especially, Finn.

 I know I don't owe it to anyone to explain all of this. I know that it's deeply personal, and some don't care to even hear this. But I'm hoping that by sharing my story, my day to day, it might spread awareness to invisible diseases. And maybe, just maybe, someone, somewhere, is going through the same thing as me, or something similar, and can relate to my story. The worst thing for me right now is feeling alone. Nobody knows how I feel. Nobody knows my symptoms. Nobody knows what I am going through.

 This is my body. And I am done being held hostage to it.

1 comment:

  1. If anyone can over come this it is you. I'm glad you are going to Boston. We love you and hope you get the help you need there.

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